BUTLER Support groups/support for parents whose children have any kind of behavioral challenges, developmental, social or emotional concerns or addictions etc. 7.7.11 PA FAMILIES INC STATEWIDE FAMILY NETWORK 1-800-947-4941 pafamilies@comcast.net www.pafamiliesinc.com CALL OR EMAIL FOR CURRENT LIST ADDITION 7.7 S.T.A.Y. SUPPORT &TRAINING FOR ATTACHMENT &YOUTH Group features Eric Guy, Attachment Specialist. Our first meeting will be held on July 26th from 5-7pm at Monarch Place, 100 Brugh Ave, Butler, PA. Dinner and youth activities will be provided. Anyone interested can register to attend the group at no cost through http://www.monarchinstitute.com/ emorter@familypathways.net PENNSYLVANIA FAMILY SUPPORT ALLIANCE Formerly parents anonymous Group for parents raising challenging kids, feeling overwhelmed Nancy McKee 216 N Washington St Butler Pa 16001 724-284-4894 HEART 2 HEART SUPPORT GROUP Group for parents of children with challenging behaviors Group will start in May 2007 Info on website www.heart2heartpa.org 814-758-1681 ADOPTION SUPPORT GROUP Diane Gieraltowski Every Child 6401 Penn Ave Suite 300 Pittsburgh Pa 15206 RESOURCE FAMILY SUPPORT GROUP Support group for resource families providing kinship, foster and adoptive care for children Family Pathways 100 Brugh Ave Butler Pa 16001 724-284-9440 Eva Morter Michelle Matthews RELATIVES AS PARENTS SUPPORT GROUP Butler Area Agency on Aging Jo Donaldson Martha Brown 111 Sunnyview Circle Suite 101 Butler Pa 16001 724-431-1213 SUMMER CAMP PARENT SUPPORT GROUP Tom DeGeorge Family Services 216 North Washington St Butler Pa 16001 724-284-4894 NAMI Support for those with family/friends with mental health/behavioral issues Jennifer Frohnapfel. 140 North Elm St Suite C Butler Pa 16001 724-431-0069 724-287-7965 MENTAL HEALTH ASSOC. Child advocacy, IEP help, drop in center, Voyager Children’s program age groups 7-9 and 10-12 (724) 287-1797 140 North Elm Street Suite A Butler Pa 16001 724-287-1965 Mha007@aol.com www.mhabutler.org 1-888-329-0468 THE ARC Support/programs for those who have mentally challenged children including advocacy for early intervention and education Phil Rosenbauer Pullman Commerce Center Suite 202 112 Hollywood Drive Butler Pa 16001 www.arcbutler.org prosenbauer@arcbutler.org MIND MATTERS: THE BUTLER TBI SUPPORT GROUP Butler Memorial Hospital , Dimmick Room 911 E. Brady St, Butler Pa 16001 Dottie Ardell 724-285-3472 Ellen Stevens 3rd Thurs. of month, 7-9pm Dot204@aol.com STRONG: SURVIVORS OF TRAUMA RECOVERY ORIENTED GROUP Butler Veterans Admin. 325 New Castle Rd, Butler 16001 Chris Diamond 724-286-4781 x 4433 4th Monday of month, 6-7:30pm Format: This group is open to veterans and other members of the community who have experienced strokes or brain injury KEEPING ON Support group for families who have loved ones struggling with the complex issues of homosexuality. KO is a ministry of the Cabot UM Church and a PFOX affiliate. Contact 724-316-1020 or email: program@cabotumc.com RIGHT TO EDUCATION TASK FORCE #4 This group meets to address issues regarding students receiving special education services. Members include parents, school officials and community reps. Any parent welcome.Serves Butler, Lawrence, Mercer Judy Campbell 724-658-4250 Jcltf44@comcast.net Ricki Hood rhood@communitycareconnect.org PARENT TRANSITION GROUP OF BUTLER COUNTY Group of parents who provide guidance to parents of students with disabilities who are making the transition from high school. Support network is for before, during and after transition. For information contact Patricia Sassone at 724-287-0791 Ext 150 psassone@irenestacy.com Betsy Rideout-724-431-0095 brideout@ccrinfo.org ADVOKID Trea Graham 332 Questend Ave Pittsburgh Pa 15228 412-341-4226 office 412-303-1709 cell Charge for attending school meetings, writing letters or reading documents but no charge for travel or talking on phone. I will aid parents via phone to be their own advocates too. advokid@mindspring.com PARENTS OF ADDICTS Butler Regional Recovery 911 East Brady St Butler Pa 16001 724-284-4016 6-8pm Monday evenings 3 North Waiting Room at Butler Hospital SEEDS OF HOPE SUPPORT GROUP Support for those who have family/children abusing drugs First United Methodist Church 200 East N St Butler Pa 16001 724-283-6160 Drug/alcohol GAM-ANON Support for loved ones of those addicted to gambling Mon. 6:30pm Allison Park Assembly of God Church 2326 Duncan Ave. Allison Park ALANON Support for family/friends who have loved one abusing alcohol Jane 724-285-7588 PLACE OF REFUGE Support group for those who have family abusing drugs and support for friends and families of those in addiction or recovery. 7:00-8:00 PM Monday Harmony-Zelienople United Methodist Church , Donna Zeigler, Jerry Thomas 123 North Pittsburgh St Zelienople, Pa 16063 724-816-8206 http://www.hzumc.org/refuge.htm NAR-ANON WESTERN REGION List of all Nar-anon sites in western Pa. Help line is 412-782-2210 http://sites.google.com/site/naranonwpa/ ADDITION 5/16 NARANON GROUP Support for family/friends of those abusing drugs Glenshaw, Shaler Township Bethel Lutheran Church 319 Scott Avenue, off Mt. Royal Blvd. “A New Beginning” Mondays 7pm Baby sitting available (call first) ADDITION 5/16 NARANON GROUP Support for family/friends of those abusing drugs New Castle Holy Cross Lutheran Church 696 Johnson Road off Rt 946 & Rt 512 Wednesdays, 7:30PM ADDITION 5/16 NARANON GROUP Support for family/friends of those abusing drugs New Castle Shenango Presbyterian Church 3144 Wilmington Road “Let Go and Let God” Thursdays, 6:00PM VICTORY GROUP, FAMILY AND FRIENDS OF ADDICTS Kay Little Victory Christian Fellowship 21150 Route 19 Cranberry Twp Pa 16066 724-453-6200 www.victorygrouponline.org SOMEONE’S CARING 1. SURVIVOR’S OF SUICIDE SUPPORT GROUP 2.GRIEF SUPPORT GROUP Support for those who have had loved ones commit suicicde Robin S Miller Bereavement Specialist and Educator 724-287-3706 724-287-2273 millerr@zbzoom.net www.thompson-miller.com SOMEONE’S CARING SUPPORT GROUP FOR PARENTS Parents who have experienced the death of a child Robin S Miller Bereavement Specialist and Educator 724-287-3706 724-287-2273 millerr@zbzoom.net www.thompson-miller.com CRANBERRY CARES Compassionate Asperger’s Parents Reaching for Enrichment and Support Asperger’s/high functioning autism support group sponsored by ABOARD Mary Limbacher 410 Auburn Drive Cranberry Twp Pa 16066 724-772-5741 www.cranberrycares.org AUTISM SUPPORT GROUP Stephanie Neely 305 East Penn St Butler Pa 16001 724-285-8720 BAFFLES Butler Autism Families and Friends Lending Encouragement and Support Online support group and meets twice a month Meets every 2nd Monday 6-8pm and every 4th Monday 9:30am-11:30am at Christ Outreach Church, 120 Walker Avenue Butler Pa Sally at kiasal@connecttime.net Stephanie at stephanieneely@webtv.net Sally Wood at mywish4cj@earthlink.net http://groups.yahoo.com/group/baffles PARENTS IN TOTO Cranberry CARES Family Outreach Center 143 S Main Street Zelienople Pa 16063 724-473-0990, 724-772-5741 Free support groups for teens, siblings, grandparents etc. Workshops and educational presentations . http://www.parentsintoto.com/index.html THE HOPE GROUP Autism group Debra Schaffner Family Behavioral Resources Warner Center 200 Renaissance Suite 401 Butler Pa 16001 724-282-9010 FBR AUTISM SUPPORT GROUP Family Support, Social Skill/Play 3rd Tuesday, 6pm 724-282-9010 Teresa O’Brien & Belinda Armstrong Family Behavioral Resources 200 Renaissance Dr Suite 401 Butler Pa 16001 AUTISM FBR/ABOARD CRANBERRY TOWNSHIP FAMILY SUPPORT AND SOCIAL SKILL/PLAY GROUP 2nd Thursday of month,6pm Facilitators- Jamie Grace/ Teresa O’Brien 20397 Route 19 Two Landmark North Suite 310 Cranberry Twp, Pa 16066 724-772-2677 butler@familybehavioralresources.com JACOB’S BLESSING SUPPORT GROUP Autism group, ABOARD 724-283-6160 Cindy Cipoletti 200 East North St Butler Pa 16001 AUTISM SOCIETY OF BUTLER COUNTY Mary Wildman PO Box 275 Evans City Pa 16033 724-538-4425 PARENT MENTOR/ADVOCATE Lynn Pukylo 816 Timberwood Dr Cranberry Twp Pa 16066 724-776-2785 ADDITION 5/12 BUTLER COUNTY DADS CLUB Grace Youth and Family Foundation We are looking for any man that is willing to meet for six weeks to focus on their role as a father in the life of a child. This includes biological fathers, step-fathers, grandfathers, adoptive fathers, non-custodial fathers, or any other man at any age that is functioning in a fatherhood role. Meetings held at The Net Outreach, 100 Center Ave. Butler Pa 16001 www.gyff.org Contact Bill Halle 724-282-0507 ADDITION 5/12 ALL PRO DAD GROUP PPS Male/Father Initiative Program One-hour monthly breakfast held before school where fathers and their children meet with other dads and kids in the school cafeteria or a local restaurant. Discuss wide range of family topics, spend time together, create fun memories, and are equipped with resources to strengthen their relationship Children’s Advocacy Center 1000 South Mercer Street New Castle, PA 16101 Tom Ford Phone: 724-658-4688 Email: t_ford100@yahoo.com UPDATED 8.21.14 MISS 22 QUTIES SPECIAL NEEDS BEAUTY PAGEANT .PO Box 2032 Cranberry Township, PA. 16066 Tammy Rose Founder and President 724-622-6096 miss22quties@gmail.com SPINA BIFIDA BLUEPRINTS SUPPORT GROUP Support group/play group for caregivers of children ages 2-5 with spina bifida and other related disabilities such as cerebral palsy, muscular dystrophy, etc. Program is affliated with The Spina Bifida Association of Western Pa and follows Pennsylvania's Early Childhood Standards. Parents participate with their children and meet other parents in the area who also has a child with special needs. BluePrints meets at Positive Steps Therapy in Renfrew, Pa every Wednesday from 6:30-7:30pm and also at The Baierl Family YMCA in Franklin Park Boro every Tuesday afternoon from 1:30-2:30pm Coordinator Barb Levandoski Call 724-934-9600 for more information and/or check our website out at www.sbawp.org. Spina Bifida Association of Western Pennsylvania 1158 Dutilh Road, Mars, Pa 16046 Phone:(724)934-9600 - Toll Free: (877)310-5433 Fax: (724) 935-8246 blevandoski@sbawp.org MENTORING PROGRAM FOR YOUTH W/DISABILITIES I CAN DO IT, YOU CAN DO IT! Three sites, GROVE CITYYMCA, BUTLER YMCA, Aebersold Recreation Center in SLIPPERY ROCK Program matches an undergrad or grad student mentor w/youth. It is an 8 week program. For more info call: Elizabeth Kemeny Slippery Rock University I CAN DO IT Coordinator 724-738-4306 BUTLER COUNTY MOMS CLUB Every other Saturday Mom's of all ages meet together for fellowship and support at The Net Outreach while their children and grandchildren enjoy faith based education and activities through our Fish Bone Ministry programming. Mom's can relax and enjoy refreshments and fellowship in a supportive environment while participating in bible study and craft activities. Meetings held at The Net Outreach, 100 Center Ave. Butler Pa 16001 www.gyff.org 724-282-0507 REGIONAL AND STATEWIDE SUPPORTS NAR-ANON FAMILY GROUP HEADQUARTERS INC. (WSO) 22527 CRENSHAW BOULEVARD, SUITE 200B TORRANCE, CALIFORNIA 90505 TOLL FREE: 1 800 477 6291 PHONE: (310) 534-8188 FAX: (310) 534-8688 E-MAIL: naranonwso@gmail.com On-Line Forum: www.naranon.com/forum www.naranon.com www.naranon.com Pa list: http://nar-anon.org/Nar-Anon/Pennsylvania.html MOMSTELL Support/education/advocacy for parents of children involved with drugs PO Box 450 Mechanicsburg, Pa 17055 717-730-2020 Sharon Smith www.momstell.com momstell@verizon.net FETAL ALCOHOL SPECTRUM DISORDER CENTER FOR EXCELLENCE http://www.fascenter.samhsa.gov/ Website provides info on FASD. FASD is an umbrella term describing the range of effects that can occur in an individual whose mother drank alcohol during pregnancy. These may include physical , mental, behavioral, and /or learning disabilities with possible lifelong implications. REMEMBERING ADAM INC Support and substance abuse prevention Deborah Fowler PO Box 665 Hastings Pa 16646 814-344-8026 1-877-767-ADAM www.rememberingadam.org ALANON/ALATEEN SUPPORT GROUP MEETINGS Group supports adults and teens who have a loved one addicted to alcohol , calendar of meetings at website http://www.pa-al-anon.org/meetings.html GAM-ANON Support for loved ones of those addicted to gambling http://www.gam-anon.org/meeting.asp PENNSYLVIANIA Hotlines: Philadelphia – 888-213-3945 NE. PA – 412-281-7484 AMERICAN FOUNDATION FOR SUICIDE PREVENTION AFSP-Pittsburgh Ann M. Mitchell, Ph.D., R.N., F.A.A.N. Associate Professor of Nursing and Psychiatry University of Pittsburgh School of Nursing 3500 Victoria Street 415 Victoria Building Pittsburgh, PA 15261 (412) 624-9005 fax: 412-383-7293 ammi@pitt.edu OPERATION MILITARY KIDS Operation: Military Kids is the U.S. Army's collaborative effort with America's communities to support children and youth impacted by deployment www.operationmilitarykids.org 814-865-2264 Project Director Susan Smith sus52@psu.edu 814-863-3828 Christie Bartley cbartley@psu.edu Military liason PENNSYLVANIA NATIONAL GUARD STATE FAMILY PROGRAM BRANCH www.pngfamilyprogram.state.pa.us 800-634-1790 Family Assistance Center Specialists Family Readiness Group Leaders State Child and Youth Program Joint Family Support Assistance Program County Locations: Lehigh, Bucks, Philadelphia, Berks, Lebanon, Dauphin, Cumberland, Cambria, Allegheny, Washington, Venango, Union, Lackawanna PENNSYLVANIA EDUCATION FOR ALL COALITION (PEAC) Diane Perry, President PO Box 263 Norwood, Pa 19074 610-522-0698 www.paedforall.org A partnership of parents, educators, related prfessionals and others working together to support the education of ALL children, together in their neighborhood schools, including children of different backgrounds and abilities. PA COUNCIL FOR EXCEPTIONAL CHILDREN www.pacec-sped.org The principal purpose of the Assoc shall be to advance the education and welfare of children and youth with exceptionalities. Contact: Dreamalee Brotz Plymouth-Whitemarsh HS 201 E. Germantown Pike Plymouth Meeting Pa 19462 610-825-1500 Ext 2014 membership@pacec-sped.org ABC EDUCATION ADVOCACY www.ABCadvocacy.net Step-by-Step Parent Advocacy and Resources for families of children with special needs in Pa public Schools Contact is Pam Cook 412-851-0252 KIDS TOGETHER INC PO Box 45 Quakertown Pa 18951 staff@kidstogether.org Volunteer non-profit provides info on inclusive communities including and advocate education listserv, email newsletter and website info. PENNSYLVANIA SCHOOL-AGE CHILD CARE ALLIANCE- PENN SACCA Group is committed to the expansion of high quality school-age care and after-school programs for children and youth. Membership is dedicated to the support of school-age professionals ands the development of quality school-age programs through advocacy and education. www.pennsacca.net Carolyn Hawk- 570-323-7134 Joyce Lang- 610-332-6541 EDUCATION LAW CENTER Non-profit legal advocacy and educational organization dedicated to ensuring that all of Pennsylvania’s children have access to a quality public education PHILADELPHIA CONTACTS 215-238-6970 elc@elc-pa.org WEBSITE- www.elc-pa.org PARENT EDUCATION NETWORK Pennsylvania’s statewide Parent Training and Information Center supports parents of children with special needs and includes information and links to Federal Special Education, National Disability Issues and Resources, Special Education Legal Links, Transportation and Travel. 2107 Industrial Highway York Pa 17402 717-600-0100 1-800-522-5827 www.parentednet.org PITTSBURGH LEARNING CENTER 3579 Masonic Way Pittsburgh Pa 15237 412-931-3181 Maria Paluselli and Beverly Anderson, Directors pghlearningcenter@comcast.net www.childrenslearningcenters.org Center for children with dyslexic/learning challenges. NEW CASTLE LEARNING CENTER Masonic Learning Centers for Children, Inc 110 East Lincoln Avenue New Castle Pa 16101 Melissa J Merritt, Director 724-654-5408 Fax 724-654-3989 mmerritt@newcastlelearningcenter.com www.childrenslearningcenters.org VISION FOR EQUALITY INC The Cast Iron Building 718 Arch St 6th floor North Philadelphia Pa 19106 215-923-3349 resources@visionforequality.org To assist people with disabilities and their families access supports and services ACHIEVA A member of The Partnership Organization for people with disabilities and their families, support and services 711 Bingham St Pittsburgh Pa 15203 contact@achieva.info 412-995-5000 1-888-272-7229 DISPUTE RESOLUTION, OFFICE FOR & SPECIAL ED CONSULTLINE 6340 Flank Drive, Suite 600 Harrisburg Pa 17112 800-992-4334 or 717-541-4960 Special ed communication & conflict resolution. Call for help with school, IEP conflicts. Manual available. This Manual is under revision in light of regulatory changes. For inquiries regarding parent rights and procedural safeguards, please contact the Special Education ConsultLine at 1-800-879-2301. For questions regarding due process, please contact Lori Shafer, Case Manager, at 1-800-222-3353, Ext. 3319. For questions regarding Mediation, please contact Judy Shanabrough, Case Manager, at 1-800-222-3353, Ext. 3301. www.odr.pattan.net CONSULTINE- 1-800-879-2301 SPEAKING OF SPEECH IEP GOAL BANK website This IEP GOAL BANK is the place where you can "deposit" your own IEP goals/objectives and "withdraw" the goals/objectives contributed by others. Few things cause more angst in our profession than writing IEP goals/objectives! http://www.speakingofspeech.com/IEP_Goal_Bank.htm PA SCHOOL TALK A new site that provides a forum for people who have concerns and ideas about public education in Pennsylvania. Some ELL Task Force members have already joined the site. We’d really like to see more ideas and information on ELL issues on the site – but that will only happen if more join .http://www.paschooltalk.org/ twitter.com/paschooltalk MENTORS FOR SELF DETERMINATION Group of self advocates, family members and caregivers whose mission is to provide current and accurate information to people regarding the MR system in Pa. We offer statewide mentoring so people have a better understanding of the system, promote self determination by sharing life erperiences and networking with others. This is done in one session or group session called Family Connections. Debbie Leasure 814.547.1577 dleasure@mentors4sd.org www.mentors4sd.org . English Language Learners (ELL) Task Force The ELL Task Force is a group, now over 10 years old, that meets regularly around the state to discuss the education of English language learners in Pennsylvania. There are nearly 200 people on the Task Force mailing list, including educators, social service providers, advocates, and parents. Meetings and e-mail updates enable the task force to work together on ELL concerns at both the state and local levels. For an end-of-year report on what the Task Force did this year, including information on the results of our work with the PA Department of Education, visit our ELL Task Force webpage. (And for additional resources and publications on ELL law and policy, see the Education Law Center website.) http://www.elc-pa.org/ELLTaskForce/news.html To be added to the Task Force mailing list, contact Len Rieser at lrieser@elc-pa.org PENNSYLVANIA CLIENT ASSISTANCE PROGRAM CAP Advocacy program helps people who are seeking services from the OVR, Blindness, Visual Services, Centers for Independent Living and other programs funded under federal law. Provides you with info and advice about rehab programs, advises you of your legal rights and responsibilities, helps you resolve problems that may arise while you are seeking services from rehab programs, There is no charge. PHILADELPHIA OFFICE 215-557-7112 1-877-533-1593 HARRISBURG OFFICE 717-233-1593 info@equalemployment.org TEENCENTRAL.NET TeenCentral.Net is a prevention and intervention resource for teens and is dedicated to improving the lives of all youth by providing emotional support and appropriate references in a safe Web environment where identity is protected and anonymity is respected. www.TeenCentral.Net info@teencentral.net JOB ACCOMMODATION NETWORK JAN helps you hire,retain,promote qualified employees/applicants with disabilities, provide accommodationoptions,etc jan@jan.wvu.edu www.jan.wvu.edu OFFICE OF VOCATIONAL REHABILITATION OVR provides services to eligible persons with disabilites with the goal of getting or keeping competitive employment. You will be eligible for OVR services if: You have a disability that is physical, mental, or emotional impairment which results in a substantial impediment to employment, and you can benefit in terms of an employment outcome from services provided, and , Vocational Rehabilitation services are required for you to prepare for, enter, engage in or retain gainful employment. A Vocational Rehabilitation Counselor will determine eligibility. OVR provides a wide range of services to eligible applicants. The individual being served and the vocational rehabilitation counselor develop an Individualized Employment Plan jointly. The services you receive will be arranged to meet your individual needs. Not everyone will need every service. OVR services include: diagnostic services, vocational evaluation, counseling, training, restoration services, placement assistance, assistive technology, and support services. There is no chanrge for diagnostic services, counseling and job placement. However, a customer maybe required sharing the cost of other services after a financial needs assessment is completed. Additional information , including local OVR office locations can be found on www.dli.state.pa.us, click on disability services. Also find OVR offices across the state. 717-787-7834 1-800-442-6352 YOUTH OUTREACH UNION Meets at the Beehive 1327 East Carson St Pittsburgh Pa 15203 Contact Mike Reber michaelreber@youthoutreachunion.com YOU is a support and advocacy network of young adults for young adults. It’s members are either involved in a child serving system or they were. This support is peer driven and the group works to meet youth where they are to solve problems and deal wit issues that are important to them. Website: www.youthoutreachunion.com Mail address: Youth Outreach Union PO Box 97771 Pittsburgh Pa 15227 STRENGTH OF US NAMI WEBSITE FOR YOUNG ADULTS www.strengthofus.org New social networking website and online resource center for young adults living with a mental health conditions. Developed by young adults, StrengthofUs.org is a user-driven social networking community where young adults can connect with peers, provide mutual support and share personal stories, creativity and helpful resources by writing and responding to blog entries, iming, engaging in discussion groups, posting on “The Wire” and sharing videos, photos and other news. The website also includes an online resource center that addresses topics young adults identified as being critically important to them. ACTIVE MINDS SUPPORT AT COLLEGE Active Minds is only org. working to utilize the student voice regarding mental health.By developing and supporting chapters of a student-run mh health awareness, education & advocacy group on camput, org works to provide info and resources etc. They encourage students to seek help asap and serve as liason between students and the mh community. • Bryn Mawr College (Bryn Mawr, PA) • Bucknell University (Lewisburg, PA) • Cabrini College (Radnor, PA) • Dickinson College (Carlisle, PA) • Drexel University (Philadelphia, PA) • Gettysburg College (Gettysburg, PA) • Immaculata University (Immaculata, PA) • Indiana University of Pennsylvania (Indiana, PA) • Juniata College (Huntingdon, PA) • Lafayette College (Easton, PA) • Mercyhurst College (Erie, PA) • Miscericordia University (Dallas, PA) • Montgomery County Community College (Blue Bell, PA) • Moravian College (Bethlehem, PA) • Muhlenberg College (Allentown, PA) • Philadelphia University (Philadelphia, PA) • University of Pennsylvania (Philadelphia, PA) (founding chapter) • University of Pittsburgh (Pittsburgh, PA) • University of Pittsburgh at Bradford (Bradford, PA) • Ursinus College (Collegeville, PA) • West Chester University (West Chester, PA) • Amy Tannenbaum, Chapters Coordinator: amy@activeminds.org (eastern US) • General Information: info@activeminds.org www.activeminds.org ONLINE PARENT TO PARENT SUPPORT GROUP BY ACHIEVA Group is for parents, family members and caregivers who have a loved one with disabilities Joyce Brandon at 412-995-5000 x513. www.achieva.info/parenttoparent.php ONLINE SUPPORT GROUP FOR AUTISM http://groups.yahoo.com/group/children_with_autism/ ESPECIALLY FOR PARENTS Especially for Parents is an online network and forum where parents of children and youth with special health care needs can share knowledge and offer support. Members are able to start a discussion, share tips, tricks and shortcuts, offer support to others, write a blog, create a group for parents with similar interests or situations, create a virtual meeting spot for a local community group, invite friends to become community members, and promote events. Visit us by going to www.pamedicalhome.org and clicking on the “Parents” button! ONLINE SUPPORT GROUP Online groups for parents and children who have many different special needs http://www.cafemom.com/groups/find.php?keyword=special%20needs CAFÉ MOM Online groups for parents and children who have many different special needs http://www.cafemom.com/groups/find.php?keyword=special%20needs ONLINE CHAT SUPPORT GROUP Group is for parents who are raising children with special needs. www.myadlcenter.org dsoucy@myadlcenter.org MENTAL HEALTH AMERICA SUPPORT COMMUNITY Anew online community that connects families, friends and caregivers for support and inspiration. http://www.mentalhealthamerica.net/community MENTAL HEALTH ASSOCIATION IN PENNSYLVANIA MHAPA works on behalf of mental health through advocacy, education and public policy. Wendy Luckenbill, Family/Child Policy Coordinator www.mhapa.org 1-800-692-7443 Wluckenbill@mhapa.org ELKS HOME NURSE PROGRAM Patricia O’Connor Director 814-781-7860 pato@ncentral.com Margie Wood Ast Director 724-225-1395 mwood15301@comcast.net ADDITION 5/16 CHILD AND ADOLESCENT BIPOLAR FOUNDATION The Child & Adolescent Bipolar Foundation improves the lives of families raising children and teens living with bipolar disorder and related conditions. Child & Adolescent Bipolar Foundation 820 Davis St. Suite 520 Evanston IL 60201 support@bpkids.org http://www.bpkids.org/connect/support-groups ONLINE SUPPORT GROUPS FOR: RTC- for parents considering, or who have a child in, a residential treatment center program. Very Young-for parents raising children age 8 or younger with bipolar or related disorders. Adoption- for parents with adopted children or those considering adoption. Support- group for parents raising a child with bipolar or related disorders. Teen- group for parents raising a teen with bipolar or related disorder. Transition-group for parents raising transition age young adults with bipolar or related mood disorders Substance Abuse- group for parents of children, teens or young adults with bipolar disorder and substance abuse issues. Military Support- for military families impacted by mood disorders Stability- for parents whose child(ren) are in a period of statility Homeschoolers- for parents considering or actively homeschooling. THE SPECIAL KIDS NETWORK Helps parents find resources for their special needs children and provide technical assistance to help groups develop, expand and maintain programs and support systems that serve children with special needs 1-877-986-4550 WEBSITE www.health.state.pa.us/skn http://www.portal.state.pa.us/portal/server.pt/community/special_kids_network/14205 (paste in your web browser) Also, live chat is available on their website too. Email: PA-SKN@Policy-Studies.com Recreation and Leisure provides individuals with disabilities with accessible recreational activities such as athletic programs and day or summer camps. Education and Training such as independent living skill, Braille instruction and family resource libraries. Health Care Products such as adaptive clothing, assistive technology, standing & walking aids. Support & Advocacy such as parent support groups, education and legal advocacy. Social Services & Counseling such as family and individual counseling, hospice care. Therapy such as equestrian, occupational, physical, play, speech. Also help with accessing MA and child care for children with medical issues PARENT TO PARENT Linking familes of children or adults with disabilities or special needs. Network created by families for families of children and adults with special needs. We connect families in similar situations with one another so that they may share experiences, offer practical information and/or support. Parent to Parent of PA 1-888-727-2706 will connect you with your nearest regional office. Web: www.parenttoparent.org SE Region Philadelphia, Delaware, Chester, Lancaster, Montgomery, Berks, Bucks, Schuylkill Regional Coordinators: Cara Forrest Office: Lancaster-Lebanon IU 13, 1110 Enterprise Road, Ste A, East Petersburg, PA 17520 Office Ph: 717-606-1298 Fax: 717-606-1445 Email: seregion@parenttoparent.org NE Region Lehigh, Northampton, Carbon, Monroe, Pike, Luzerne, Lackawanna, Wyoming, Wayne, Susquehanna Regional Coordinator: Jody L. Miller Office: Community Relations Department, Wayne Memorial Hospital, 601 Park St, Honesdale, PA 18431 Office Ph: 570-251-3208 Fax: 570-253-8993 Email: neregion@parenttoparent.org SC Region York, Adams, Franklin, Fulton, Bedford, Lebanon, Dauphin, Cumberland, Perry, Huntingdon, Blair, Juniata, Mifflin Regional Coordinator: Carmen Krawczak Office: N/A Office Ph: 717-540-0263 Email: ckrawczak@parenttoparent.org NC Region Bradford, Sullivan, Columbia, Montour, Northumberland, Snyder, Union, Centre, Lycoming, Clinton, Tioga, Potter Regional Coordinator: Office: 2401 Reach Road, Ste 206. Williamsport PA 17701 Office Ph: 570-321-8585 Office Fax: 570-323-1738 Email: ncregion@parenttoparent.org SW Region Somerset, Fayette, Greene, Washington, Westmoreland, Cambria, Indiana, Allegheny, Armstrong, Butler, Beaver Regional Coordinators: Jennifer Grybosky, Nicole Zilli Office: 724-837-6530 swregion@parenttoparent.org NW Region Clearfield, Jefferson, Clarion, Venango, Lawrence, Mercer, Forest, Elk, Cameron, McKean, Warren, Crawford, Erie Region Coordinator: Lisa Kray Office: Forest/Warren County Human Services, 623 Elm Street, PO Box 276, Tionesta, PA 16353 Office Ph: 814-755-7610 Office Fax: 814-755-7617 Email: nwregion@parenttoparent.org ADDITION 5/16 EPILEPSY FOUNDATION Resources, Information, Teens, Education, Daycare, Financial Planning, Safety, Sitters, J. Kiffin Penry Patient Travel Assistance Fund: www.epilepsyfoundation.org Library of Resources http://www.epilepsyfoundation.org/programs/Library.cfm Spanish Epilepsy website http://new.epilepsyfoundation.org/epilepsia/ Epilepsy Youth Council http://www.goeyc.org/ Epilepsy Foundation of Eastern Pennsylvania: http://www.efepa.org/ (800) 887-7165 Epilepsy Foundation of Central/Western Pennsylvania: http://www.efwp.org/home.jsp Pittsburgh Office (800)-361-5885 Harrisburg Office: (800) 336-0301 Erie Office: (814) 451-1135 Johnstown Office: (814) 262-7494 Epilepsy.com: A vast amount of online information with special categories for kids, teen, women, families, and seniors: http://www.epilepsy.com/new_visitors Epilepsy.com/professionals: A vast amount of online information aimed at professionals: http://professionals.epilepsy.com/homepage/index.html Epilepsy and My Child- Great for parents (this website has a "Just Diagnosed" section: http://www.epilepsyandmychild.org/ My friend Matty- A Story about Living with Epilepsy: A colorful picture book about the active, happy life of a third grade boy with epilepsy: In English: http://www.epilepsyandmychild.org/_content/My_Friend_Matty.pdf AUTISMLINK Support, information etc Online support groups and discussion boards 376 Wagon Wheel Trail Wexford Pa 15090 412-377-8778 info@autismlink.com www.autismlink.com ABOARD Support for parents of children with autism/autism spectrum, website etc Howard Carpenter 35 Wilson St Suite 100 Pittsburgh Pa 15223 1-800-827-9385 info@aboard.org www.aboard.org THE CENTER FOR AUTISM RESEARCH 3535 Market Street Suite 860 Philadelphia, PA 19104 1-866-570-6524 autism@email.chop.edu http://www.research.chop.edu/car The Center for Autism Research (CAR) is a collaborative effort between The Children’s Hospital of Philadelphia and the University of Pennsylvania. CAR’s goals are to identify the causes of autism spectrum disorders (ASD) and develop effective treatments. CAR conducts research studies for infants at risk for being diagnosed with ASD (due to having a sibling already diagnosed) as well as toddlers, school-aged children, and adults. Families receive comprehensive assessment reports and are paid for their time and travel costs. STARFISH ADVOCACY ASSOCIATION This is an Internet community for families of children with neurological disorders such as ADHD, bipolar disorder, Asperger’s, PDD, SID, learning disabilites, OCD, tourette syndrome, etc. Services include forum boards, interactive chat room, moderated chats, informational resources, online classes in educational advocacy, education consultations. 216-283-2377 www.starfishadvocacy.org starfish@starfishadvocacy.org Starfish Advocacy Assoc 3341 Warrensville Center Road Suite 203 Shaker Heights, Ohio 44122 PA TOURETTE SYNDROME ALLIANCE, INC info@patsainc.org 1-800-990-3300 717-337-1134 www.patsainc.org Provide Information and Support for those touched by Tourette Syndrome in the state of PA. Provide Consultants to assist parents and schools with educational plans. Advocates will do IEP for any child diagnosed with tourettes in any county in Pa ASERT BUREAU OF AUTISM CALL IN FOR RESOURCES The center is now open. For info call 1-877-231-4244 www.asertinfo.com PRADER-WILLI SYNDROME ASSOC Debra Fabio 104 Persimmon Place Cranberry Twp 16066 724-779-4415 412-561-3026 EMAIL SUPPORT GROUPS Ages 0-5 Support Group Ages 6-12 Support Group Teen Support Group Ages 18 and up Support Group Grandparent Support Group Siblings Support Group Military Families Prader-Willi Syndrome and Autism Support Group Spanish Prader-Willi Support Group Providers Group www.pwsausa.org ONLINE SUPPORT GROUP FOR PRADER-WILLI This is a group of family members, friends and professionals involved in the life of someone with Prader-Willi syndrome. The group is established to share information about: Pennsylvania Medical and Professional Resources Individual Educational Plan (IEP) issues eligibility for state services and announce or create focus group meetings around the state http://health.groups.yahoo.com/group/PWSA-PA/ ACQUIRED BRAIN INJURY NETWORK OF PA, INC. Survivors and families facing the future with hope. Free newsletter, Infoline, brochures, staff, training 215-699-2139 www.abin-pa.org www.groups.yahoo.com/group/abin-pa BRAIN INJURY ASSOC OF PA 2400 Park Drive Harrisburg Pa 17110 717-657-3601 866-635-7097 info@biapa.org www.biapa.org ATTACHMENT DISORDERATTACh, the Association for Treatment and Training in the Attachment of Children, is an international coalition of professionals and families dedicated to helping those with attachment difficulties by sharing our knowledge, talents and resources. www.attach.org SELECTIVE MUTISM SITES Several sites below with info on selective mutism. http://www.healthline.com/search?q1=selective+mutism&utm_source=no_health_channel&utm_medium=google&utm_campaign=serp&utm_term=selective%20mutism http://www.selectivemutismfoundation.org/ http://www.selectivemutism.org/ ADDITION 5/11/11 THE SIBLING SUPPORT PROJECT The Sibling Support Project is the only national effort dedicated to the interests of over six million brothers and sisters of people with special health, mental health, and developmental needs. A Kindering Center program Don Meyer, Director 6512 23rd Ave NW, #213 Seattle, WA 98117 phone (206) 297-6368 fax (509) 752-6789 email donmeyer@siblingsupport.org web http://www.siblingsupport.org/ training calendar http://plus.calendars.net/sibshop ADDITION 5/16 WESTERN PENNSYLVANIA SCHOOL FOR BLIND CHILDREN SIBSHOPS Sibshops held periodically throughout the school year for children 5-13 years of age. Provide opportunity to meet other siblings in a relaxed, recreational environment Contact Mark Kislan at the school 201 North Bellefield Pittsburgh, PA 15213 map 412-621-0100 x122 www.wpsbc.org PENNSYLVANIA PARENTS OF BLIND CHILDREN Supports parents of children with low vision, visual impairment and blilndness throughout Pa. Contact Carlton Walker, President 213 North First St McConnellsburg Pa 17233 717-485-3383 717-658-9894 c PaPoBC@gmail.com carltonwalker@gmail.com THE PA PARTNERSHIP FOR THE BLIND The PA Partnership for the Blind contact Gordon Boe at 215-699-6535 or g.boe@comcast.net SPINA BIFIDA ASSOCIATION 2950 Potshop Road PO Box 859 Worcester, Pa 19490 800-223-0222 610-584-5530 Fax 215-412-9396 info@sbadv.org www.sbadv.org PA OFFICE FOR THE DEAF & HARD OF HEARING PA Office for the Deaf and Hard of Hearing phone: 717-783-4912 or 1-800-233-3008 e-mail ra-li-ovr-odhh@state.pa.us PA SOCIETY FOR THE ADVANCEMENT OF THE DEAF Pa Society for the Advancement of the Deaf www.psadweb.org MARCH OF DIMES 5168 Campbell’s Run Road, Suite 101 Pittsburgh Pa 15205 412-505-2200 Fax 412-505-2209 www.birthdefects.org PA437@marchofdimes.com Down Syndrome Association of Pittsburgh (DSAP). The DSAP lists Margaret Olisky, President, Down Syndrome Association of Pittsburgh, 5513 William Flynn Highway, #400 P.M.B. #238 Gibsonia, PA, 15044. www.dsapgh.org OVEREATERS ANONYMOUS Group is for those who are extremely overweight, even morbidly obese; moderately overweight; average weight; underweight; still maintaining periodic control over their eating behavior; or totally unable to control their compulsive eating. http://www.oa.org/meetings/find-a-meeting.php ADDITION 5/11 ALL PRO DAD GROUP One-hour monthly breakfast held before school where fathers and their children meet with other dads and kids in the school cafeteria or a local restaurant. Discuss wide range of family topics, spend time together, create fun memories, and are equipped with resources to strengthen their relationship. FOR INFO TO START A CHAPTER : allprodad@familyfirst.net www.allprodad.com CRC OF PITTSBURGH CHILDREN’S RIGHTS COUNCIL The mission of CRC to minimize the emotional, physical and economic abuse, neglect and distress of children and the development of at-risk behaviors following relationship breakups between parents involved in highly conflicted disputes. Mr Michael Nieland M.D. President 1400 Inverness Avenue Pittsburgh Pa 15217 412-621-0222 http://www.crckids.org/chapter-locations-pennsylvania.htm CRC OF PHILADELPHIA CHILDREN’S RIGHTS COUNCIL The mission of CRC to minimize the emotional, physical and economic abuse, neglect and distress of children and the development of at-risk behaviors following relationship breakups between parents involved in highly conflicted disputes. Mr Bill Clemens President 8049 Pine Road Suite C11 Philadelphia Pa 19111 215-745-0594 wclemens@earthlink.net http://www.crckids.org/chapter-locations-pennsylvania.htm PENNSYLVANIA STATE RESOURCE FAMILY ASSOCIATION/ PSRFA We advocates for all those who care about children and their families. We work supportively with foster, adoptive, and kinship families, and with local foster parent associations and agencies who care for the children we serve. www.psrfa.org 800-951-5151 717-671-0102 DIVORCE CARE FOR KIDS SUPPORT GROUPS DC4K is a special group to help your children heal from the pain caused by a separation or divorce. DC4K provides your children with a safe and neutral place to recognize and learn to share their feelings. For 13 weeks your children become involved in a fun, caring group at a church near you. The weekly session topics help your children learn that God’s love strengthens them and helps them turn their sadness to hope and their anger to joy.Each session is filled with motivating and exciting activities. Games, crafts, role playing, discussion times, journaling and activity books help your children process the divorce and move forward in their lives. The music CDs, snacks, read aloud stories, exercises and Bible verses teach your children to relax and rest secure in God’s love. The Kids Like Me and Stories from the Bible video dramas present stories of children just like your children, who are experiencing divorce-related problems and have found help and encouragement. DC4K is a powerful ministry for kids 5–12 years of age. www.dc4k.org/about/ ADDITION 5/16 GENERATION UNITED AARP sponsors informational service supports efforts of state to pass legislation favorable to grandparents involved in raising grandchildren http://www2.gu.org/OURWORK/Grandfamilies.aspx GENERATIONS UNITED SENIORS 4 KIDS Civic engagement initiative that demonstrates the important role older adults can play in support of issues directly benefitting children and youth. We help adults age 50+create statewide networks of community leaders and grassroots volunteers that raise visibility of older adults in support of high-quality early care and education. Anne Tria Wise Intergenerational Engagement Manager Generations United 1331 H St. NW Suite 900 Washington DC 20005 202-289-3979 awise@gu.org www.gu.org www.seniors4kids.org GOVERNOR’S COMMISSION FOR CHILDREN AND FAMILIES List of Health and Human Services List of Advocacy Resources Parent Guides www.pachildren.state.pa.us A website with information for parents and families. PENNSYLVANIA HUMAN RIGHTS COMMISSION Mission is tto administer and enforce the PHRAct and the PFEOA of Pa for the identification and elimination of discrimination and providing of equal opportunity for all persons. PITTSBURGH OFFICE 412-565-5395 HARRISBURG OFFICE 717-787-9784 PHILADELPHIA OFFICE 215-560-2496 www.phrc.state.pa.us ACCESS DOCTORS Gives you the tools you need to create an accessible home or public building. www.accessdoctors.atate.pa.us PENNSYLVANIA HEALTH LAW PROJECT Provides free legal services and advocacy to Pennsylvanians having trouble accessing publicly funded health care coverage or service. CALL- 1-800-274-3258 1-866-236-6310 TTY EMAIL - staff@phlp.org www.phlp.org DISABILITY RIGHTS NETWORK Disability Rights Network of Pennsylvania (DRN) is a statewide, non–profit corporation designated as the federally–mandated organization to advance and protect the civil rights of all adults and children with disabilities. DRN works with people with disabilities and their families to ensure their rights to live in their communities with the services they need, to receive a full and inclusive education, to live free of discrimination, abuse and neglect, and to have control and self–determination over their services. General information /questions can be emailed to intake@drnpa.org where intake workers who are advocates and attorneys. www.drnpa.org Harrisburg Office 1414 N. Cameron St., Suite C Harrisburg, PA 17103 drnpa-hbg@drnpa.org 1-800-692-7443 [Voice] 1-877-375-7139 [TDD] (717) 236-8110 [Voice] (717) 346-0293 [TDD] (717) 236-0192 [Fax] Philadelphia Office The Philadelphia Building 1315 Walnut St., Suite 400 Philadelphia, PA 19107–4798 (215) 238-8070 (Voice) (215) 789-2498 (TDD) (215) 772-3126 (Fax) drnpa-phila@drnpa.org Pittsburgh Office 429 4th Avenue, Suite 1901 Pittsburgh, PA 15219-1505 (412) 391-5225 [Voice] (412) 467-8940 [TDD] (412) 391-4496 [Fax] drnpa-pgh@drnpa.org [Email] Wexford Office 8500 Brooktree Road Suite 100 Wexford, PA 15090 800-276-0928 [Voice] 724-934-1344 [Fax WIC WOMEN, INFANTS AND CHILDREN NUTRITION PROGRAM Provides nutrition education, healthy foods, breastfeeding support and referrals to health and social services for pregnant and breastfeeding women, infants and children under age five. PLEASE NOTE: A child with an ACCESS card (medical assistance) is income eligible for WIC benefits; however, all participants must provide their household income, regardless if they have medical assistance or not. 1-800-942-9467 www.health.state.pa.us PLEASE SEND INFO ON ANY OTHER GROUPS FOR PARENTS WHO HAVE CHILDREN WITH CHALLENGES SUCH AS : MENTAL HEALTH, SOCIAL , EMOTIONAL DEVELOPMENTAL DISABILITIES, AUTISM LEARNING DRUG AND ALCOHOL SUICIDE ADOPTION, FOSTER GROUPS ETC SEND INFO TO : 1-800-947-4941 pafamilies@comcast.net Please note we are also now listing groups for parents who have children with physical challenges as well.