LUZERNE

LUZERNE
Support groups/supports for parents whose children have any kind of behavioral challenges, developmental, social or emotional concerns or addictions.
 
 
PA FAMILIES INC
STATEWIDE FAMILY NETWORK
1-800-947-4941
pafamilies@comcast.net
CALL OR EMAIL FOR CURRENT LIST
www.pafamiliesinc.com
 
NAMI
National Alliance for the Mentally Il
Support for those who have children who suffer with mental health, behavioral and other challenges
info@namipalehighvalley.org
610-882-0142
www.namipalehighvalley.org
 
THE ADVOCACY ALLIANCE
Support and advocacy
71 North Franklin St
Wilkes-Barre Pa 18710
570-822-7097
 
RIGHT TO EDUCATION TASK FORCE
This group meets to address issues regarding students receiving special education services. Members include parents, school officials and community reps. Any parent welcome.
Roxanna Stahr- parent contact
570-384-1254
Rstar1@epix.net
Rita Cheskiewicz 570-675-4441
ritachesk@aol.com
Jeanne Barilla IU18 570-287-9681
jbarilla@iu18.org
 
LOCAL INTERAGENCY COORDINATING COUNSEL
LICC
Judy Kresky
MH/MR Office
111 North Pa Avenue
Suite 300
Wilkes-Barre Pa 18701
1-800-816-1880
570-831-7281
Parents and professionals coordinate and plan for early intervention services in the local community. Goal is to provide a strategy for collaboration and coordination of agency resources to insure that all children and families in need of early intervention are identified and provided with needed services
 
THE ARC OF LUZERNE COUNTY
Advocates
183 Market Street
Suite 102
Kingston Pa 18704
570-714-6320
 
 SHINE
Self Help Information Network Exchange provides info and referral to support groups in northeastern Pa. Sponsors workshops and special events for self-help advocates.
SHINE
538 Spruce Street
Suite 420
Scranton Pa 18503
570-961-1234 (24 hrs)
shine@vacnepa.org
http://www.vacnepa.org
 
FATHERHOOD SUPPORT GROUP
Diane Klish
Greater Nanticoke Area School District
25 Robert St
Nanticoke Pa 18634
570-735-0935
PENNSYLVANIA FAMILY SUPPORT ALLIANCE
Support for parents with the challenge of raising children
Pittston Area Family Center
Ann Marie Adonzio
210 Rock St
Pittston Pa 18640
570-883-1389
 
JOHN HEINZ BRAIN INJURY SUPPORT GROUP
The Board Room at John Heinz Institute of Rehab
150 Mundy Stree
Wilkes-Barre Pa 18702
Donna Kopicki 570-826-3888
Last Wed of month, 7-9pm
Open discussion, some speakers, plan developed by group month by month
 
THE EATING DISORDER SUPPORT GROUP
Support group and Mental Health Advocacy
Michelle Airhart
300 Parkview Circle
Apartment 4114
Wilkes-Barre Pa 18702
570-820-0913
survive_ed_together@yahoo.com
www.eatingdisorderwb.tripod.lycos.com
 
SUPPORT GROUP FOR FOSTER & ADOPTIVE FAMILIES
Catholic Social Services
33 East Northampton St
Wilkes-Barre, Pa 18701
2nd Monday of month
Call Joan Gower
570-822-7118 x470
adoption@csswb.org
 
 
 
 
ADOPTION, FOSTER OR KINSHIP SUPPORT GROUP
Craig Lukatch
Catholic Social Services
214 West Walnut Street
Hazelton Pa 18201
1-800-465-0578
 
SECOND TIME AROUND SUPPORT GROUP
Support for grandparents and others raising children, childcare provided
3rd Wed. of month, 6:30pm-8pm
Georgia Salazar
384 Carey Avenue
Wilkes-Barre Pa 18702
570-819-0814
 
OPERATION GRANDPARENTS
YMCA’S in northeastern Pa help grandparents with classes, summer camps, babysitting, scholarships etc.
To find a YMCA near you contact Joe Clapps at 570-822-1158 x 3425
 
SECOND TIME AROUND SUPPORT GROUP- Hazleton
Support for grandparents and others raising children, childcare provided
Meet at Catholic Social Services
2nd Thurs of month, 6:30pm- 8pm
Georgia Salazar
570-819-0814
 
ALANON/ALATEEN
Support groups for adults and for teens that have loved ones who abuse alcohol
Lea
570-459-6179
 
 
 
 
 
 
 
PARENTS OF ADOLESCENTS ALANON ETC.
Nurses Station
1-800-762-9492
First Hospital
Choices Drug and Alcohol Facility
562 Wyoming Avenue
2nd floor
Kingston Pa 18704
Meet Tues, 7-8pm, large group room
 
ALANON
Support for parents/loved ones of those addicted/struggling with alcohol problems
Gail
570-889-5529
 
FAMILY TO FAMILY PROGRAM
Support, information, education for parents/loved ones of those dependent on drugs or alcohol
Nick Colangelo
Clearbrook Lodge
890 Bethel Hill Road
Shickshinny Pa 18655
570-823-1171
www.clearbrookinc.com
clearbrk@eix.net
Group meets at the St Paul’s Lutheran Church, Route 118
Dallas Pa &
Good Shepard Church 87S, Hunter Hgwy Drums, Pa 18222
 
 
 
 
 
 
 
 
 
 
 
 
FAMILIES HELPING FAMILIES
Support, information, education for parents/loved ones of those dependent on drugs or alcohol
Nick Colangelo
890 Bethel Hill Road
Shickshinny Pa 18655
570-823-1171
www.clearbrookinc.com
clearbrk@epix.net
Group meets at the Tunkhannock United Methodist Church
Church St
Tunkhannock
 
THE SUICIDE BEREAVEMENT SUPPORT GROUP
Denise Rowinski
33 East Northampton St
Wilkes Barre Pa 18701
570-822-7118 X307
 
YOU ARE NOT ALONE SUPPORT GROUP- HAZLETON AREA
Community support group available for victims and survivors of domestic violence.
Contact-1-800-424-5600 or 570-823-7312
Services are free and confidential
 
YOU ARE NOT ALONG SUPPORT GROUP- WILKES-BARRE AREA
Community support group available for victims and survivors of domestic violence.
Contact-1-800-424-5600 or 570-823-7312
Childcare is provided.
Services are free and confidential
 
 
 
 
 
FAMILIES SUPPORTING FAMILIES WITH AUTISM
Darlene Minneci
85 North Wilson Street
Hazelton Pa 18201
570-454-6602
 
SAFE
Supporting Autism and Families Everywhere
Support group for parents of children who face the challenge of autism
George Shadie- president
Donna Brenner
469 South Franklin St
Wilkes Barre Pa 18702
570-822-7259
 
AUTISM AND RELATED DISORDERS SUPPORT GROUP
Kathy Baas
1905 S&H Avenue
Danville Pa 17821
570-275-8904
 
 
 
 REGIONAL AND STATEWIDE SUPPORTS
 
NAR-ANON FAMILY GROUP HEADQUARTERS INC. (WSO)
22527 CRENSHAW BOULEVARD, SUITE 200B
TORRANCE, CALIFORNIA 90505
TOLL FREE: 1 800 477 6291
PHONE: (310) 534-8188
FAX: (310) 534-8688
E-MAIL: naranonwso@gmail.com
On-Line Forum: www.naranon.com/forum
www.naranon.com
www.naranon.com
http://nar-anon.org/Nar-Anon/Pennsylvania.html
 
MOMSTELL
Support/education/advocacy for parents of children involved with drugs
PO Box 450 Mechanicsburg, Pa 17055
717-730-2020
Sharon Smith
www.momstell.com
momstell@verizon.net
 
FETAL ALCOHOL SPECTRUM DISORDER CENTER FOR EXCELLENCE
http://www.fascenter.samhsa.gov/
Website provides info on FASD.
FASD is an umbrella term describing the range of effects that can occur in an individual whose mother drank alcohol during pregnancy. These may include physical , mental, behavioral, and /or learning disabilities with possible lifelong implications.
 
REMEMBERING ADAM INC
Support and substance abuse prevention
Deborah Fowler
PO Box 665
Hastings Pa 16646
814-344-8026
1-877-767-ADAM
www.rememberingadam.org
 
ADDITION 12/22
ALANON/ALATEEN SUPPORT GROUP MEETINGS
Group supports adults and teens who have a loved one addicted to alcohol , calendar of meetings at website
http://www.pa-al-anon.org/meetings.html
 
 
 
 
 
 
 
ADDITION 12/30
GAM-ANON
Support for loved ones of those addicted to gambling
http://www.gam-anon.org/meeting.asp
 
PENNSYLVIANIA
Hotlines:
Philadelphia – 888-213-3945
NE. PA – 412-281-7484
AMERICAN FOUNDATION FOR SUICIDE PREVENTION
AFSP-Pittsburgh

Ann M. Mitchell, Ph.D., R.N., F.A.A.N.
Associate Professor of Nursing and Psychiatry
University of Pittsburgh School of Nursing
3500 Victoria Street
415 Victoria Building
Pittsburgh, PA 15261
(412) 624-9005
fax: 412-383-7293
ammi@pitt.edu
ADDITION 12/13
OPERATION MILITARY KIDS
Operation: Military Kids is the U.S. Army's collaborative effort with America's communities to support children and youth impacted by deployment
www.operationmilitarykids.org
814-865-2264 Project Director Susan Smith sus52@psu.edu
814-863-3828 Christie Bartley
cbartley@psu.edu Military liason
 
 
 
 
 
 
 
 
ADDITION 12/1/10
PENNSYLVANIA NATIONAL GUARD STATE FAMILY PROGRAM BRANCH
www.pngfamilyprogram.state.pa.us
800-634-1790
Family Assistance Center Specialists
Family Readiness Group Leaders
State Child and Youth Program
Joint Family Support Assistance Program
County Locations: Lehigh, Bucks, Philadelphia, Berks, Lebanon, Dauphin, Cumberland, Cambria, Allegheny, Washington, Venango, Union, Lackawanna
 
PENNSYLVANIA EDUCATION FOR ALL COALITION (PEAC)
Diane Perry, President
PO Box 263
Norwood, Pa 19074
610-522-0698
www.paedforall.org
A partnership of parents, educators, related prfessionals and others working together to support the education of ALL children, together in their neighborhood schools, including children of different backgrounds and abilities.
 
PA COUNCIL FOR EXCEPTIONAL CHILDREN
www.pacec-sped.org
The principal purpose of the Assoc shall be to advance the education and welfare of children and youth with exceptionalities.
Contact:
Dreamalee Brotz
Plymouth-Whitemarsh HS
201 E. Germantown Pike
Plymouth Meeting Pa 19462
610-825-1500 Ext 2014
membership@pacec-sped.org
 
ABC EDUCATION ADVOCACY
www.ABCadvocacy.net
Step-by-Step Parent Advocacy and Resources for families of children with special needs in Pa public Schools
Contact is Pam Cook
412-851-0252
 
KIDS TOGETHER INC
PO Box 45
Quakertown Pa 18951
staff@kidstogether.org
Volunteer non-profit provides info on inclusive communities including and advocate education listserv, email newsletter and website info.
 
PENNSYLVANIA SCHOOL-AGE CHILD CARE ALLIANCE- PENN SACCA
Group is committed to the expansion of high quality school-age care and after-school programs for children and youth. Membership is dedicated to the support of school-age professionals ands the development of quality school-age programs through advocacy and education.
www.pennsacca.net
Carolyn Hawk- 570-323-7134
Joyce Lang- 610-332-6541
 
EDUCATION LAW CENTER
Non-profit legal advocacy and educational organization dedicated to ensuring that all of Pennsylvania’s children have access to a quality public education
PHILADELPHIA CONTACTS
215-238-6970
elc@elc-pa.org
WEBSITE- www.elc-pa.org
 
 
 
 
PARENT EDUCATION NETWORK
Pennsylvania’s statewide Parent Training and Information Center supports parents of children with special needs and includes information and links to Federal Special Education, National Disability Issues and Resources, Special Education Legal Links, Transportation and Travel.
2107 Industrial Highway
York Pa 17402
717-600-0100
1-800-522-5827
www.parentednet.org
 
BLOOMSBURG LEARNING CENTER
Masonic Learning Centers for Children, Inc., dyslexia etc
150 Market Street
Bloomsburg, Pa 17815
570-389-1400
Cathy Clements, Director
bmlcfdc@verizon.net
 
VISION FOR EQUALITY INC
The Cast Iron Building
718 Arch St
6th floor North
Philadelphia Pa 19106
215-923-3349
resources@visionforequality.org
To assist people with disabilities and their families access supports and services
 
ACHIEVA
A member of The Partnership
Organization for people with disabilities and their families, support and services
711 Bingham St
Pittsburgh Pa 15203
contact@achieva.info
412-995-5000
1-888-272-7229
 
DISPUTE RESOLUTION, OFFICE FOR & SPECIAL ED CONSULTLINE
6340 Flank Drive, Suite 600
Harrisburg Pa 17112
800-992-4334 or 717-541-4960
Special ed communication & conflict resolution. Call for help with school, IEP conflicts. Manual available.
This Manual is under revision in light of regulatory changes.  For inquiries regarding parent rights and procedural safeguards, please contact the Special Education ConsultLine at 1-800-879-2301.  For questions regarding due process, please contact Lori Shafer, Case Manager, at 1-800-222-3353, Ext. 3319.  For questions regarding Mediation, please contact Judy Shanabrough, Case Manager, at 1-800-222-3353, Ext. 3301.
www.odr.pattan.net
CONSULTINE- 1-800-879-2301
 
ADDITION 12/1
SPEAKING OF SPEECH IEP GOAL BANK website
This IEP GOAL BANK is the place where you can "deposit" your own IEP goals/objectives and "withdraw" the goals/objectives contributed by others. Few things cause more angst in our profession than writing IEP goals/objectives!
http://www.speakingofspeech.com/IEP_Goal_Bank.htm
 
 
 
 
 
 
 
 
 
 
 
ADDITION 12/13
PA SCHOOL TALK
A new site that provides aforum for people who have concerns and ideas about public education in Pennsylvania.  Some ELL Task Force members have already joined the site.  We’d really like to see more ideas and information on ELL issues on the site – but that will only happen if more join
.http://www.paschooltalk.org/
twitter.com/paschooltalk
 
MENTORS FOR SELF DETERMINATION
Group of self advocates, family members and caregivers whose mission is to provide current and accurate information to people regarding the MR system in Pa. We offer statewide mentoring so people have a better understanding of the system, promote self determination by sharing life erperiences and networking with others. This is done in one session or group session called Family Connections.
Debbie Leasure
 814.547.1577
dleasure@mentors4sd.org
www.mentors4sd.org
 
MENTORS FOR SELF DETERMINATION
Janet A. Brouse
1414 North Cameron Street Suite B
Harrisburg Pa 17103
717-233-2252
1-877-233-2008
janetb@mentors4sd.org
Statewide group for people with disabilities and families offers training, technical assistance and support thru mentoring
A member of The Partnership.
 
 
ADDITION 12/13
English Language Learners (ELL) Task Force  
The ELL Task Force is a group, now over 10 years old, that meets regularly around the state to discuss the education of English language learners in Pennsylvania. There are nearly 200 people on the Task Force mailing list, including educators, social service providers, advocates, and parents. Meetings and e-mail updates enable the task force to work together on ELL concerns at both the state and local levels. For an end-of-year report on what the Task Force did this year, including information on the results of our work with the PA Department of Education, visit our ELL Task Force webpage.  (And for additional resources and publications on ELL law and policy, see the Education Law Center website.)  http://www.elc-pa.org/ELLTaskForce/news.html  To be added to the Task Force mailing list, contact Len Rieser at lrieser@elc-pa.org
 
TRANSITION MAP is an online hub of information and resources for transitioning youth ages 14-21, with developmental disabilities who are graduating from special education and entering adult life in the community
Transition Consultant
Jennifer Graham
215-641-1200
www.transitionmap.org
 
 
 
 
 
 
PENNSYLVANIA CLIENT ASSISTANCE PROGRAM
CAP
Advocacy program helps people who are seeking services from the OVR, Blindness, Visual Services, Centers for Independent Living and other programs funded under federal law.
Provides you with info and advice about rehab programs, advises you of your legal rights and responsibilities, helps you resolve problems that may arise while you are seeking services from rehab programs,
There is no charge.
PHILADELPHIA OFFICE
215-557-7112
1-877-533-1593
HARRISBURG OFFICE
717-233-1593
info@equalemployment.org
 
 
TEENCENTRAL.NET
TeenCentral.Net is a prevention and intervention resource for teens and is dedicated to improving the lives of all youth by providing emotional support and appropriate references in a safe Web environment where identity is protected and anonymity is respected.
www.TeenCentral.Net
info@teencentral.net
 
 
 
 
 
 
 
 
 
 
 
 
 
OFFICE OF VOCATIONAL REHABILITATION
OVR provides services to eligible persons with disabilites with the goal of getting or keeping competitive employment. You will be eligible for OVR services if: You have a disability that is physical, mental, or emotional impairment which results in a substantial impediment to employment, and you can benefit in terms of an employment outcome from services provided, and ,
Vocational Rehabilitation services are required for you to prepare for, enter, engage in or retain gainful employment. A Vocational Rehabilitation Counselor will determine eligibility.
OVR provides a wide range of services to eligible applicants. The individual being served and the vocational rehabilitation counselor develop an Individualized Employment Plan jointly. The services you receive will be arranged to meet your individual needs. Not everyone will need every service. OVR services include: diagnostic services, vocational evaluation, counseling, training, restoration services, placement assistance, assistive technology, and support services. There is no chanrge for diagnostic services, counseling and job placement. However, a customer maybe required sharing the cost of other services after a financial needs assessment is completed.
Additional information , including local OVR office locations can be found on www.dli.state.pa.us, click on disability services. Also find OVR offices across the state.
717-787-7834
1-800-442-6352
 
 
 
 
YOUTH OUTREACH UNION
Meets at the Beehive
1327 East Carson St
Pittsburgh Pa 15203
Contact Mike Reber
michaelreber@youthoutreachunion.com
YOU is a support and advocacy network of young adults for young adults. It’s members are either involved in a child serving system or they were. This support is peer driven and the group works to meet youth where they are to solve problems and deal wit issues that are important to them.
Website: www.youthoutreachunion.com
Mail address:
Youth Outreach Union
PO Box 97771
Pittsburgh Pa 15227
 
STRENGTH OF US NAMI WEBSITE FOR YOUNG ADULTS
www.strengthofus.org
New social networking website and online resource center for young adults living with a mental health conditions. Developed by young adults, StrengthofUs.org is a user-driven social networking community where young adults can connect with peers, provide mutual support and share personal stories, creativity and helpful resources by writing and responding to blog entries, iming, engaging in discussion groups, posting on “The Wire” and sharing videos, photos and other news. The website also includes an online resource center that addresses topics young adults identified as being critically important to them.
 
 
 
 
 
ACTIVE MINDS SUPPORT AT COLLEGE
Active Minds is only org. working to utilize the student voice regarding mental health.By developing and supporting chapters of a student-run mh health awareness, education & advocacy group on camput, org works to provide info and resources etc. They encourage students to seek help asap and serve as liason between students and the mh community.
· Bryn Mawr College (Bryn Mawr, PA)
· Bucknell University (Lewisburg, PA)
· Cabrini College (Radnor, PA)
· Dickinson College (Carlisle, PA)
· Drexel University (Philadelphia, PA)
· Gettysburg College (Gettysburg, PA)
· Immaculata University (Immaculata, PA)
· Indiana University of Pennsylvania (Indiana, PA)
· Juniata College (Huntingdon, PA)
· Lafayette College (Easton, PA)
· Mercyhurst College (Erie, PA)
· Miscericordia University (Dallas, PA)
· Montgomery County Community College (Blue Bell, PA)
· Moravian College (Bethlehem, PA)
· Muhlenberg College (Allentown, PA)
· Philadelphia University (Philadelphia, PA)
· University of Pennsylvania (Philadelphia, PA) (founding chapter)
· University of Pittsburgh (Pittsburgh, PA)
· University of Pittsburgh at Bradford (Bradford, PA)
· Ursinus College (Collegeville, PA)
· West Chester University (West Chester, PA)
· Amy Tannenbaum, Chapters Coordinator: amy@activeminds.org (eastern US)
· General Information: info@activeminds.org
www.activeminds.org
 
JOB ACCOMMODATION NETWORK
JAN helps you hire,retain,promote qualified employees/applicants with disabilities, provide accommodationoptions,etc
jan@jan.wvu.edu
www.jan.wvu.edu
 
MENTAL HEALTH ASSOCIATION IN PENNSYLVANIA
MHAPA works on behalf of mental health through advocacy, education and public policy.
Wendy Luckenbill, Family/Child Policy Coordinator www.mhapa.org
1-800-692-7443
Wluckenbill@mhapa.org
 
ELKS HOME NURSE PROGRAM
Patricia O’Connor Director
814-781-7860 pato@ncentral.com
Margie Wood Ast Director
724-225-1395 mwood15301@comcast.net
 
ADDITION 9/23
ONLINE PARENT TO PARENT SUPPORT GROUP BY ACHIEVA
Group is for parents, family members and caregivers who have a loved one with disabilities
Joyce Brandon at 412-995-5000 x513.
www.achieva.info/parenttoparent.php
 
ONLINE SUPPORT GROUP FOR AUTISM
http://groups.yahoo.com/group/children_with_autism/
 
 
 
ESPECIALLY FOR PARENTS
Especially for Parents is an online network and forum where parents of children and youth with special health care needs can share knowledge and offer support.  Members are able to start a discussion, share tips, tricks and shortcuts, offer support to others, write a blog, create a group for parents with similar interests or situations, create a virtual meeting spot for a local community group, invite friends to become community members, and promote events. Visit us by going to www.pamedicalhome.org and clicking on the “Parents” button!
 
ONLINE SUPPORT GROUP
Online groups for parents and children who have many different special needs
http://www.cafemom.com/groups/find.php?keyword=special%20needs
 
CAFÉ MOM
Online groups for parents and children who have many different special needs
http://www.cafemom.com/groups/find.php?keyword=special%20needs
 
ONLINE CHAT SUPPORT GROUP
Group is for parents who are raising children with special needs.
www.myadlcenter.org
dsoucy@myadlcenter.org
 
ADDITION 12/22
MENTAL HEALTH AMERICA SUPPORT COMMUNITY
Anew online community that connects families, friends and caregivers for support and inspiration.
http://www.mentalhealthamerica.net/community
PARENT TO PARENT
Linking familes of children or adults with disabilities or special needs.
Network created by families for families of children and adults with special needs. We connect families in similar situations with one another so that they may share experiences, offer practical information and/or support.
 Parent to Parent of PA
1-888-727-2706 will connect you with your nearest regional office.
Web: www.parenttoparent.org
 
SE Region
Philadelphia, Delaware, Chester, Lancaster, Montgomery, Berks, Bucks, Schuylkill
Regional Coordinators: Cara Forrest
Office: Lancaster-Lebanon IU 13, 1110 Enterprise Road, Ste A, East Petersburg, PA 17520
Office Ph: 717-606-1298
Fax: 717-606-1445
Email: seregion@parenttoparent.org
 
NE Region
Lehigh, Northampton, Carbon, Monroe, Pike, Luzerne, Lackawanna, Wyoming, Wayne, Susquehanna
Regional Coordinator: Jody L. Miller
Office: Community Relations Department, Wayne Memorial Hospital, 601 Park St, Honesdale, PA 18431
Office Ph: 570-251-3208
Fax: 570-253-8993
Email: neregion@parenttoparent.org
 
 
 
 
 
 
 
 
SC Region
York, Adams, Franklin, Fulton, Bedford, Lebanon, Dauphin, Cumberland, Perry, Huntingdon, Blair, Juniata, Mifflin
Regional Coordinator: Carmen Krawczak
Office: N/A
Office Ph: 717-540-0263
Email: ckrawczak@parenttoparent.org
 
NC Region
Bradford, Sullivan, Columbia, Montour, Northumberland, Snyder, Union, Centre, Lycoming, Clinton, Tioga, Potter
Regional Coordinator:
Office: 2401 Reach Road, Ste 206. Williamsport PA 17701
Office Ph: 570-321-8585
Office Fax: 570-323-1738
Email: ncregion@parenttoparent.org
 
SW Region
Somerset, Fayette, Greene, Washington, Westmoreland, Cambria, Indiana, Allegheny, Armstrong, Butler, Beaver
Regional Coordinators: Jennifer Grybosky, Nicole Zilli
Office: 724-837-6530
swregion@parenttoparent.org
 
NW Region
Clearfield, Jefferson, Clarion, Venango, Lawrence, Mercer, Forest, Elk, Cameron, McKean, Warren, Crawford, Erie
Region Coordinator: Lisa Kray
Office: Forest/Warren County Human Services, 623 Elm Street, PO Box 276, Tionesta, PA 16353
Office Ph: 814-755-7610
Office Fax: 814-755-7617
Email: nwregion@parenttoparent.org
 
ADDITIONS 12/11
THE SPECIAL KIDS NETWORK
Helps parents find resources for their special needs children and provide technical assistance to help groups develop, expand and maintain programs and support systems that serve children with special needs
1-877-986-4550
WEBSITE
www.health.state.pa.us/skn
http://www.portal.state.pa.us/portal/server.pt/community/special_kids_network/14205 (paste in your web browser)
Also, live chat is available on their website too.
Email:
PA-SKN@Policy-Studies.com
Recreation and Leisureprovides individuals with disabilities with accessible recreational activities such as athletic programs and day or summer camps. 
Education and Trainingsuch as independent living skill, Braille instruction and family resource libraries.
Health Care Productssuch as adaptive clothing, assistive technology, standing & walking aids.
Support & Advocacysuch as parent support groups, education and legal advocacy.
Social Services & Counseling such as family and individual counseling, hospice care.
Therapy such as equestrian, occupational, physical, play, speech.
Also help with accessing MA and child care for children with medical issues
 
ADDITION 12/11
ASERT BUREAU OF AUTISM CALL IN FOR RESOURCES
The center is now open. For info call 1-877-231-4244
Website is: http://www.elc-pa.org/ELLTaskForce/news.html
AUTISMLINK
Support, information etc
Online support groups and discussion boards
376 Wagon Wheel Trail
Wexford Pa 15090
412-377-8778
info@autismlink.com
www.autismlink.com
 
ABOARD
Support for parents of children with autism/autism spectrum, website etc
Howard Carpenter
35 Wilson St
Suite 100
Pittsburgh Pa 15223
1-800-827-9385
info@aboard.org
www.aboard.org
 
THE CENTER FOR AUTISM RESEARCH
3535 Market Street
Suite 860
Philadelphia, PA 19104
1-866-570-6524
autism@email.chop.edu
http://www.research.chop.edu/car
The Center for Autism Research (CAR) is a collaborative effort between
The Children’s Hospital of Philadelphia and the University of
Pennsylvania. CAR’s goals are to identify the causes of autism
spectrum disorders (ASD) and develop effective treatments. CAR conducts
research studies for infants at risk for being diagnosed with ASD (due
to having a sibling already diagnosed) as well as toddlers, school-aged
children, and adults. Families receive comprehensive assessment reports
and are paid for their time and travel costs.
 
STARFISH ADVOCACY ASSOCIATION
This is an Internet community for families of children with neurological disorders such as ADHD, bipolar disorder, Asperger’s, PDD, SID, learning disabilites, OCD, tourette syndrome, etc. Services include forum boards, interactive chat room, moderated chats, informational resources, online classes in educational advocacy, education consultations.
216-283-2377
www.starfishadvocacy.org
starfish@starfishadvocacy.org
Starfish Advocacy Assoc
3341 Warrensville Center Road
Suite 203
Shaker Heights, Ohio 44122
 
PA TOURETTE SYNDROME ALLIANCE, INC
 info@patsainc.org
1-800-990-3300
717-337-1134
www.patsainc.org
Provide Information and Support for those touched by Tourette Syndrome in the state of PA. 
Provide Consultants to assist parents and schools with educational plans.
Advocates will do IEP for any child diagnosed with tourettes in any county in Pa
 
 
 
 
 
 
 
 
 
 
 
 
ADDITIONAL INFO 12/22
PRADER-WILLI SYNDROME ASSOC
Debra Fabio
104 Persimmon Place
Cranberry Twp 16066
724-779-4415
412-561-3026
EMAIL SUPPORT GROUPS
Ages 0-5 Support Group
Ages 6-12 Support Group
Teen Support Group
Ages 18 and up Support Group
Grandparent Support Group
Siblings Support Group
Military Families
Prader-Willi Syndrome and Autism Support Group
Spanish Prader-Willi Support Group
Providers Group
www.pwsausa.org
ONLINE SUPPORT GROUP FOR PRADER-WILLI
This is a group of family members, friends and professionals involved in the life of someone with Prader-Willi syndrome. The group is established to share information about:
 Pennsylvania Medical and Professional Resources
Individual Educational Plan (IEP) issues
 eligibility for state services and
 announce or create focus group meetings around the state
http://health.groups.yahoo.com/group/PWSA-PA/
 
 
 
 
 
 
 
 
 
 
 ACQUIRED BRAIN INJURY NETWORK OF PA, INC.
Survivors and families facing the future with hope. Free newsletter, Infoline, brochures, staff, training
215-699-2139
www.abin-pa.org
www.groups.yahoo.com/group/abin-pa
 
BRAIN INJURY ASSOC OF PA
2400 Park Drive
Harrisburg Pa 17110
717-657-3601
866-635-7097
info@biapa.org
www.biapa.org
 
ATTACHMENT DISORDERATTACh, the Association for Treatment and Training in the Attachment of Children, is an international coalition of professionals and families dedicated to helping those with attachment difficulties by sharing our knowledge, talents and resources.
www.attach.org
 
SELECTIVE MUTISM SITES
Several sites below with info on selective mutism.
http://www.healthline.com/search?q1=selective+mutism&utm_source=no_health_channel&utm_medium=google&utm_campaign=serp&utm_term=selective%20mutism
http://www.selectivemutismfoundation.org/
http://www.selectivemutism.org/
 
 
 
 
 
 
 
 
PENNSYLVANIA PARENTS OF BLIND CHILDREN
Supports parents of children with low vision, visual impairment and blilndness throughout Pa.
Contact Carlton Walker, President
213 North First St
McConnellsburg Pa 17233
717-485-3383
717-658-9894 c
PaPoBC@gmail.com
carltonwalker@gmail.com
 
THE PA PARTNERSHIP FOR THE BLIND
The PA Partnership for the Blind contact Gordon Boe at 215-699-6535 or g.boe@comcast.net
 
SPINA BIFIDA ASSOCIATION
2950 Potshop Road
PO Box 859
Worcester, Pa 19490
800-223-0222
610-584-5530
Fax 215-412-9396
info@sbadv.org
www.sbadv.org
 
PA OFFICE FOR THE DEAF & HARD OF HEARING
PA Office for the Deaf and Hard of Hearing  phone: 717-783-4912 or 1-800-233-3008 e-mail ra-li-ovr-odhh@state.pa.us 
 
PA SOCIETY FOR THE ADVANCEMENT OF THE DEAF
Pa Society for the Advancement of the Deaf  www.psadweb.org 
 
 
 
 
 
 
MARCH OF DIMES
1255 S Cedar Crest Blvd., Suite 2500 Allentown Pa 18103
610-439-7420
Fax 610-439-7424www.birthdefects.org
PA437@marchofdimes.com
 
ADDITION 1/4
Down Syndrome Association of Pittsburgh (DSAP). 
The DSAP lists Margaret Olisky, President, Down Syndrome Association of Pittsburgh, 5513 William Flynn Highway, #400 P.M.B. #238 Gibsonia, PA, 15044.www.dsapgh.org
 
 
OVEREATERS ANONYMOUS
Group is for those who are extremely overweight, even morbidly obese; moderately overweight; average weight; underweight; still maintaining periodic control over their eating behavior; or totally unable to control their compulsive eating.
http://www.oa.org/meetings/find-a-meeting.php
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
CRC OF PHILADELPHIA
CHILDREN’S RIGHTS COUNCIL
The mission of CRC to minimize the emotional, physical and economic abuse, neglect and distress of children and the development of at-risk behaviors following relationship breakups between parents involved in highly conflicted disputes.
Mr Bill Clemens
President
8049 Pine Road
Suite C11
Philadelphia Pa 19111
215-745-0594
wclemens@earthlink.net
 http://www.crckids.org/chapter-locations-pennsylvania.htm
 
CRC OF PITTSBURGH
CHILDREN’S RIGHTS COUNCIL
The mission of CRC to minimize the emotional, physical and economic abuse, neglect and distress of children and the development of at-risk behaviors following relationship breakups between parents involved in highly conflicted disputes.
Mr Michael Nieland M.D.
President
1400 Inverness Avenue
Pittsburgh Pa 15217
412-621-0222
 http://www.crckids.org/chapter-locations-pennsylvania.htm
 
 
 
 
 
 
 
 
 
 
DIVORCE CARE FOR KIDS SUPPORT GROUPS
DC4K is a special group to help your children heal from the pain caused by a separation or divorce. DC4K provides your children with a safe and neutral place to recognize and learn to share their feelings.
For 13 weeks your children become involved in a fun, caring group at a church near you. The weekly session topics help your children learn that God’s love strengthens them and helps them turn their sadness to hope and their anger to joy.Each session is filled with motivating and exciting activities. Games, crafts, role playing, discussion times, journaling and activity books help your children process the divorce and move forward in their lives. The music CDs, snacks, read aloud stories, exercises and Bible verses teach your children to relax and rest secure in God’s love. The Kids Like Me and Stories from the Bible video dramas present stories of children just like your children, who are experiencing divorce-related problems and have found help and encouragement.
DC4K is a powerful ministry for kids 5–12 years of age.
www.dc4k.org/about/
 
 
 
 
 
 
 
 
 
 
GOVERNOR’S COMMISSION FOR CHILDREN AND FAMILIES
List of Health and Human Services
List of Advocacy Resources
Parent Guides
www.pachildren.state.pa.us
A website with information for parents and families.
 
PENNSYLVANIA HUMAN RIGHTS COMMISSION
Mission is tto administer and enforce the PHRAct and the PFEOA of Pa for the identification and elimination of discrimination and providing of equal opportunity for all persons.
PITTSBURGH OFFICE
412-565-5395
HARRISBURG OFFICE
717-787-9784
PHILADELPHIA OFFICE
215-560-2496
www.phrc.state.pa.us
 
ACCESS DOCTORS
Gives you the tools you need to create an accessible home or public building.
www.accessdoctors.atate.pa.us
 
PENNSYLVANIA HEALTH LAW PROJECT
Provides free legal services and advocacy to Pennsylvanians having trouble accessing publicly funded health care coverage or service.
CALL- 1-800-274-3258
1-866-236-6310 TTY
EMAIL - staff@phlp.org
www.phlp.org
 
 
 
 
 
 
 
DISABILITY RIGHTS NETWORK
Disability Rights Network of Pennsylvania (DRN) is a statewide, non–profit corporation designated as the federally–mandated organization to advance and protect the civil rights of all adults and children with disabilities.  DRN works with people with disabilities and their families to ensure their rights to live in their communities with the services they need, to receive a full and inclusive education, to live free of discrimination, abuse and neglect, and to have control and self–determination over their services. 
General information /questions can be emailed to intake@drnpa.org where intake workers who are advocates and attorneys.
www.drnpa.org
 
Harrisburg Office
1414 N. Cameron St., Suite C
Harrisburg, PA 17103
drnpa-hbg@drnpa.org
1-800-692-7443 [Voice]
1-877-375-7139 [TDD]
(717) 236-8110 [Voice]
(717) 346-0293 [TDD]
(717) 236-0192 [Fax]
Philadelphia Office
The Philadelphia Building
1315 Walnut St., Suite 400
Philadelphia, PA 19107–4798
(215) 238-8070 (Voice)
(215) 789-2498 (TDD)
(215) 772-3126 (Fax)
drnpa-phila@drnpa.org
Pittsburgh Office
429 4th Avenue, Suite 1901
Pittsburgh, PA 15219-1505
(412) 391-5225 [Voice]
(412) 467-8940 [TDD]
(412) 391-4496 [Fax]
drnpa-pgh@drnpa.org [Email]
Wexford Office
8500 Brooktree Road
Suite 100
Wexford, PA 15090
800-276-0928 [Voice]
724-934-1344 [Fax
 
 
GENERATIONS UNITED SENIORS 4 KIDS
Civic engagement initiative that demonstrates the important role older adults can play in support of issues directly benefitting children and youth. We help adults age 50+create statewide networks of community leaders and grassroots volunteers that raise visibility of older adults in support of high-quality early care and education.
Anne Tria Wise
Intergenerational Engagement Manager
Generations United
1331 H St. NW Suite 900
Washington DC 20005
202-289-3979
awise@gu.org
www.gu.org
www.seniors4kids.org
 
PENNSYLVANIA STATE RESOURCE FAMILY ASSOCIATION/ PSRFA
We advocates for all those who care about children and their families. We work supportively with foster, adoptive, and kinship families, and with local foster parent associations and agencies who care for the children we serve.
www.psrfa.org
800-951-5151
717-671-0102
 
 
 
 
 
WIC
WOMEN, INFANTS AND CHILDREN NUTRITION PROGRAM
Provides nutrition education, healthy foods, breastfeeding support and referrals to health and social services for pregnant and breastfeeding women, infants and children under age five.  
PLEASE NOTE: A child with an ACCESS card (medical assistance) is income eligible for WIC benefits; however, all participants must provide their household income, regardless if they have medical assistance or not.
1-800-942-9467
www.health.state.pa.us
 
 
 PLEASE SEND INFO ON ANY OTHER GROUPS FOR PARENTS WHO HAVE CHILDREN WITH CHALLENGES SUCH AS :
MENTAL HEALTH, SOCIAL , EMOTIONAL
DEVELOPMENTAL DISABILITIES, AUTISM
LEARNING
DRUG AND ALCOHOL
SUICIDE
ADOPTION, FOSTER GROUPS ETC
SEND INFO TO :
1-800-947-4941
pafamilies@comcast.net
Please note we are also now listing groups for parents who have children with physical challenges as well.